Living with Dying: Resources for the Living, the Dying & Caregivers
My intent for this section is to help visitors "live all the days of their lives" and focus on living, rather than on dying or the dying process. In this section I share a variety of resources and information to help those who are living and those who are dying to focus on living each moment. Resources are also provided for the Caregivers of the dying.
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Articles & Resources
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Symptoms of Actively Dying
Lichter studied 200 actively dying cancer patients and discovered a list of certain symptoms that required some attention to make the dying person feel more comfortable. This article provides useful list of these common symptoms of actively dying along with ways for caregivers to help in relieving or managing the symptom.
Lichter studied 200 actively dying cancer patients and discovered a list of certain symptoms that required some attention to make the dying person feel more comfortable. This article provides useful list of these common symptoms of actively dying along with ways for caregivers to help in relieving or managing the symptom.
Being with a Dying Person
At the end of life, what often matters most to a person who is dying is simply being--taking time to hold a hand, give support and just be. This article looks at how to be with a dying person.
At the end of life, what often matters most to a person who is dying is simply being--taking time to hold a hand, give support and just be. This article looks at how to be with a dying person.
(PDF File) The Dying Process: A Guide for Caregivers
The Dying Process is a 26 page downloadable PDF guide that helps in preparing anyone caring for a dying person. Published by the Hospice Foundation of America as a tools in their Caregiver’s Corner, this helpful guide is a sensitive resource for families who are being served by hospice. The Dying Process as a training aid for hospice staff and volunteers.
The Dying Process is a 26 page downloadable PDF guide that helps in preparing anyone caring for a dying person. Published by the Hospice Foundation of America as a tools in their Caregiver’s Corner, this helpful guide is a sensitive resource for families who are being served by hospice. The Dying Process as a training aid for hospice staff and volunteers.
Handbook for Mortals : Guidance For People Facing Serious Illness
Handbook for Mortals has been described as a "must read" for people and families facing serious illness as well as for their physicians. Excerpts from many of the different sections of the book are available online. An excellent guide for people and their families experiencing serious chronic illness.
Handbook for Mortals has been described as a "must read" for people and families facing serious illness as well as for their physicians. Excerpts from many of the different sections of the book are available online. An excellent guide for people and their families experiencing serious chronic illness.
Living Your Dying - A Video Documentary
This video documentary is about the life and work of Mitsuo Aoki, a semi-retired theologian, minister, college professor and founder of the University of Hawaii's Department of Religion, who has spent four decades showing others how to experience death as a vital, inseparable part of life.
This video documentary is about the life and work of Mitsuo Aoki, a semi-retired theologian, minister, college professor and founder of the University of Hawaii's Department of Religion, who has spent four decades showing others how to experience death as a vital, inseparable part of life.
When Death is Approaching: Resources for Caregivers
From the American Cancer Society an online printable article provides practical information for caregivers to use when death is approaching. This resource is intended to help relieve some of the anxiety that surrounds the end of life by educating caregivers about the process of dying.
From the American Cancer Society an online printable article provides practical information for caregivers to use when death is approaching. This resource is intended to help relieve some of the anxiety that surrounds the end of life by educating caregivers about the process of dying.
The Final 48 Hours : Coaching
Coaching in the final 48 hours is an excerpt from the online version of the book Palliative Care Perspectives by James L. Hallenbeck, M.D. The article is intended for those who will be coaching and offering support to families during the dying process, however offers beneficial information for caregivers as well.
Coaching in the final 48 hours is an excerpt from the online version of the book Palliative Care Perspectives by James L. Hallenbeck, M.D. The article is intended for those who will be coaching and offering support to families during the dying process, however offers beneficial information for caregivers as well.
Hospice Volunteers: Helping People LIVE
Caregiving Connection, part of the National Hospice and Palliative Care Organization, produced an 8 page brochure on Hospice Volunteers: Helping People LIVE. This online PDF File discusses some of the helpful things that volunteers can do as well as the many benefits of being a hospice volunteer.
Caregiving Connection, part of the National Hospice and Palliative Care Organization, produced an 8 page brochure on Hospice Volunteers: Helping People LIVE. This online PDF File discusses some of the helpful things that volunteers can do as well as the many benefits of being a hospice volunteer.
Doula to Accompany and Comfort Volunteer Program
The Doula to Accompany and Comfort Volunteer Program is a non-sectarian organization, part of the The Shira Ruskay Center, that trains volunteers who provide companionship and comfort for people at the end-of-life. Those served are people who have limited support from family and friends.
The Doula to Accompany and Comfort Volunteer Program is a non-sectarian organization, part of the The Shira Ruskay Center, that trains volunteers who provide companionship and comfort for people at the end-of-life. Those served are people who have limited support from family and friends.
Discussing Death and Dying with Children
From the ADAM's Illustrated Health Encyclopedia comes this informative helpful review on how to discuss death with children. The review provides information about how a child's concept of death varies with age, which must be considered when talking to children about death and dying.
From the ADAM's Illustrated Health Encyclopedia comes this informative helpful review on how to discuss death with children. The review provides information about how a child's concept of death varies with age, which must be considered when talking to children about death and dying.
For the Families of the Dying, Coaching as the Hours Wane
This excellent article from the New York Times provides information on a newer concept in end of life care coaching families of the dying through the dying process. These coaches or end-of-life volunteers also refer to themselves as doulas.
This excellent article from the New York Times provides information on a newer concept in end of life care coaching families of the dying through the dying process. These coaches or end-of-life volunteers also refer to themselves as doulas.
The Sacred Dying Foundation
Sacred Dying involves both the body and the soul in the greatest transition we are ever called upon to make. The Sacred Dying Foundation is dedicated to changing the way society experiences death and dying. Their primary goal is to return the sacred to the act of dying by serving those who are at the end-of-life.
Sacred Dying involves both the body and the soul in the greatest transition we are ever called upon to make. The Sacred Dying Foundation is dedicated to changing the way society experiences death and dying. Their primary goal is to return the sacred to the act of dying by serving those who are at the end-of-life.
In Death Watch for Stranger, Becoming a Friend to the End
Another article from the New York Times features a moving story about the journey that a new doula from the Doula to Accompany and Comfort Volunteer Program takes in walking with a person during his final few months.
Another article from the New York Times features a moving story about the journey that a new doula from the Doula to Accompany and Comfort Volunteer Program takes in walking with a person during his final few months.
Bill of Rights for Funeral Preplanning
A helpful online resource from the National Funeral Directors Association (NFDA) discusses the rights and protections that consumers should expect from an ethical and reputable NFDA funeral home when preplanning their funerals. This important resource explains what consumers should expect and require of a preneed contract.
A helpful online resource from the National Funeral Directors Association (NFDA) discusses the rights and protections that consumers should expect from an ethical and reputable NFDA funeral home when preplanning their funerals. This important resource explains what consumers should expect and require of a preneed contract.
(PDF File) Conversations Before the Crisis
A 16-page online PDF file available from Caregiving Connections provides tips for bringing up many of the topics that people need to consider before the crisis, namely care around the end-of-life. This e-booklet provides some advice on finding ways of using trigger points that occur to start the difficult conversations with loved ones.
A 16-page online PDF file available from Caregiving Connections provides tips for bringing up many of the topics that people need to consider before the crisis, namely care around the end-of-life. This e-booklet provides some advice on finding ways of using trigger points that occur to start the difficult conversations with loved ones.
Cope with Life's Challenges
Following a loss, death, tragic event or major life challenge, it may be difficult to remember to take care for oneself. Focusing on the basis survival needs for the body--remembering to eat, sleep and exercise--is especially needed initially after a life changing event. This short list provides basic, healthy coping strategies to keep you moving during the first few days.
Following a loss, death, tragic event or major life challenge, it may be difficult to remember to take care for oneself. Focusing on the basis survival needs for the body--remembering to eat, sleep and exercise--is especially needed initially after a life changing event. This short list provides basic, healthy coping strategies to keep you moving during the first few days.