Pediatric Palliative and Hospice Care
Pediatric Palliative Care and Hospice
Facts and figures about pediatric hospice in the United States.
Partnership for Parents
A Support Network for Parents of Children with Serious Illnesses.
Compassionate Friends Network
The mission of The Compassionate Friends is to assist families toward the positive resolution of grief following the death of a child of any age and to provide information to help others be supportive.
Palliative Care for Children
In our modern society, with the advancement of medical technology and specialized care, we expect children to outlive their parents. Unfortunately that isn’t always the case. Approximately 53,000 children die each year from accidents or trauma, congenital conditions, prematurity, inherited disorders, or acquired illness.
Children's Hospice and Palliative Care Coalition
Resources for families and care providers for pediatric palliative care.
How Do I Choose a Hospice for My Child?
Tips for choosing a pediatric hospice provider for your child.
When Your Child is in Pain
A helpful brochure in PDF format published by Caring Connections on how to help your child when he or she is in pain.
Concurrent Hospice Care for Children
New requirements from the Center for Medicare Services make it possible for children to receive concurrent hospice care for terminal illnesses.
The Needs of Grieving Children
Learn about how children deal with grief. Find out what myths about childrens grief could be keeping them from getting the support they need.
American Academy of Pediatrics Statement
The American Academy of Pediatrics Statement on Pediatric Palliative Care.
The Tiniest of Patients: Perinatal Hospice
Perinatal hospices offer support to parents and their families who are faced with a pregnancy that will most likely result in the death of the infant.
These books are recommended for school age children ages 5-12.
The Nick Snow Children's Hospice and Palliative Care Act of 2006
In September 2006 California Governor Arnold Schwarzenegger signed Assembly Bill 1745, also know as "The Nick Snow Children's Hospice & Palliative Care Act of 2006" into law.
Partnering for Children
Too many families aren’t aware of the benefits of pediatric palliative care and don’t access its resources. This problem is now being addressed by a collaborative effort between the Children’s Hospice and Palliative Care Coalition, the National Hospice and Palliative Care Organization, and the National Hospice Foundation. These organizations have joined forces to form Partnering for Children.
Stories are timeless and universal and can be an effective tool to help children and teens cope with grief and loss.Here is a list of books I recommend for children and teens.
Preschool to Early Grade School
Leading Causes of Infant Death
The leading causes of infant death haven't changed in the last several years, despite advanced technology and increased focus on prenatal care. While most people would expect the rate of infant death to be decreasing rapidly, it has actually remained pretty stable since 2000.
The overall rate of infant mortality in the United States is 6.86 deaths per 1,000 births. This data from the CDC'…