Pediatric Palliative and Hospice Care
Each year in the United States, roughly 50,000 children die from and 500,000 children cope with life-threatening conditions. Such children and their families require comprehensive, compassionate, and developmentally appropriate palliative care.
Palliative Care for Children
In our modern society, with the advancement of medical technology and specialized care, we expect children to outlive their parents. Unfortunately that isn’t always the case. Approximately 53,000 children die each year from accidents or trauma, congenital conditions, prematurity, inherited disorders, or acquired illness.
In our modern society, with the advancement of medical technology and specialized care, we expect children to outlive their parents. Unfortunately that isn’t always the case. Approximately 53,000 children die each year from accidents or trauma, congenital conditions, prematurity, inherited disorders, or acquired illness.
Leading Causes of Infant Death
The leading causes of infant death haven't changed in the last several years, despite advanced technology and increased focus on prenatal care. While most people would expect the rate of infant death to be decreasing rapidly, it has actually remained pretty stable since 2000.
The leading causes of infant death haven't changed in the last several years, despite advanced technology and increased focus on prenatal care. While most people would expect the rate of infant death to be decreasing rapidly, it has actually remained pretty stable since 2000.
The overall rate of infant mortality in the United States is 6.86 deaths per 1,000 births. This data from the CDC'…
The Tiniest of Patients: Perinatal Hospice
Perinatal hospices offer support to parents and their families who are faced with a pregnancy that will most likely result in the death of the infant.
Perinatal hospices offer support to parents and their families who are faced with a pregnancy that will most likely result in the death of the infant.
Partnering for Children
Too many families aren’t aware of the benefits of pediatric palliative care and don’t access its resources. This problem is now being addressed by a collaborative effort between the Children’s Hospice and Palliative Care Coalition, the National Hospice and Palliative Care Organization, and the National Hospice Foundation. These organizations have joined forces to form Partnering for Children.
Too many families aren’t aware of the benefits of pediatric palliative care and don’t access its resources. This problem is now being addressed by a collaborative effort between the Children’s Hospice and Palliative Care Coalition, the National Hospice and Palliative Care Organization, and the National Hospice Foundation. These organizations have joined forces to form Partnering for Children.
The Nick Snow Children's Hospice and Palliative Care Act of 2006
In September 2006 California Governor Arnold Schwarzenegger signed Assembly Bill 1745, also know as "The Nick Snow Children's Hospice & Palliative Care Act of 2006" into law.
In September 2006 California Governor Arnold Schwarzenegger signed Assembly Bill 1745, also know as "The Nick Snow Children's Hospice & Palliative Care Act of 2006" into law.
American Academy of Pediatrics Statement
The American Academy of Pediatrics Statement on Pediatric Palliative Care.
The American Academy of Pediatrics Statement on Pediatric Palliative Care.
When Your Child is in Pain
A helpful brochure in PDF format published by Caring Connections on how to help your child when he or she is in pain.
A helpful brochure in PDF format published by Caring Connections on how to help your child when he or she is in pain.
Children's Hospice and Palliative Care Coalition
Resources for families and care providers for pediatric palliative care.
Resources for families and care providers for pediatric palliative care.
Compassionate Friends Network
The mission of The Compassionate Friends is to assist families toward the positive resolution of grief following the death of a child of any age and to provide information to help others be supportive.
The mission of The Compassionate Friends is to assist families toward the positive resolution of grief following the death of a child of any age and to provide information to help others be supportive.
Partnership for Parents
A Support Network for Parents of Children with Serious Illnesses.
A Support Network for Parents of Children with Serious Illnesses.